Chronically ill with #POTS (Postural Orthostatic Tachycardia Syndrome), living on unceded Whadjuk Noongar land. Quietly obsessed with the musical Tanz der Vampire. ~* Transphobic 'feminism' is garbage *~
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Published at
2023-09-23T04:08:34+02:00 Event JSON
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Last Notes npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie My neighbours' snowpea plants are SO tall now. Everytime I see them when I'm opening up my windows I feel jealous. I want snowpea plants ๐ฅฒ (I swear to god if you reply saying how EASY growing plants is I will block you even if we previously got on well, don't fucking test me on this. Nothing is SO EASY when you're lying in bed with PEM feeling like hot garbage. I hate that I need this disclaimer but evidence suggests I fucking do ๐คจ) npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie When I told my husband last night that I was having my first ever perimenopause hot flash, he said: that's exciting!! So I feel like I deserve some recognition for protecting this man from my PMS for 25 years, apparently?? ๐
He was also not in the room when my GP told me that having had PND twice, it's a fairly safe bet that I'm not going to have a good perimenopause ๐ซ npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie I looked up pumps years ago especially so I could learn the shoe taxonomy, and now people are calling a completely different kind of shoe pumps?? No. npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie Literally no one with ME/CFS has ever been like "actually it's no big deal, I wouldn't have done anything to prevent this condition if I could have, chill out, you won't mind joining this club at all!" Fucking public health officials, on the other hand ๐ The bad ones do not care about public health, AT ALL. They do not care if you spend the rest of your life in bed, unemployed, and impoverished. npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie Hey so ableism isn't actually okay no matter how much of a shit that person is or was, or what damage they did. Just like we can only get human rights for everyone by making sure the 'worst' people get human rights, we can't get accessibility and disability justice for everyone if we're doing ableism on certain people as a form of revenge. IMO. I do thinking wishing people get what they deserve is fine though, so make of that what you will ๐คท๐ผโโ๏ธ npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie I've never had a fantasy football team but I do kind of have a fantasy medical team ๐
Entirely composed of either patient experts or doctors/researchers I've come across via social media, and entirely unreachable from where I live ๐ npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie @npub19djโฆn6qc *Before reading the text in the images* I bet she was told she was anxious. ... Of course. npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie Anyone have a hot tip on easiest (+ safest) ways to clean very well established layer of green gunk from inside a birdbath, apart from elbow grease? I read that you should use vinegar and not detergent so as not to risk harming bird's feather waterproofing, but vinegar and elbow grease isn't working terribly well. Don't have a high pressure cleaner unfortunately. npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie (sorry for the strident tone, but I'm sick of seeing articles etc casually blaming lockdowns for problems they shone a light on, but DID NOT CAUSE) npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie If covid lockdowns helped some kids realise there were options in life aside from going to school every day and being made miserable as a result, and they didn't want to go back to school after the lockdown, THE LOCKDOWN WASN'T THE FUCKING PROBLEM, WAS IT?? npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie @npub1mm5โฆ9qt8 Me in 2019: "ugh I wish more people knew about POTS :(" Me now: "wait no not like that ๐ญ" ๐ npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie Maybe I am overthinking a joke toot but now I'm curious: when drinking a hot drink in a mug, do you reckon you usually hold the mug in your dominant hand or non-dominant? Or is it purely determined by things like what side your bedside table or coffee table is on? ๐ค npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie Aaargh why are so many research studies like this? "When did you first see a doctor about your POTS symptoms?" Idk, is that when I went to the GP because I already suspected I had POTS, is it one of the many many many times I went and said "I'm still much more tired than I should be", or one of the many childhood visits which could be related to POTS but we'll never know because no one tested me until I diagnosed myself in my late 30s? npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie Ok, so. This is the first menstrual cycle I've had in ages where my #LDN is causing #gastroparesis, AND I think it's also my first #anovulatory cycle in ages. I don't suppose anyone has experience of taking LDN either side of #perimenopause/#menopause and whether the side effects changed? npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie If you grow up somewhere that's snowy and frosty, is it hard to comprehend how unbelievably magical snow and frost looks to those of us from nonfrosty climes? ๐ฅบ npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie @npub19djโฆn6qc Yeah, I hate it :( I can't remember the name but I've seen a great organisation doing advocacy around this, I think especially with reference to facial differences. npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie Ugh. Watching Swap Shop & apparently this old wheelchair is perfect for Halloween decorating/haunted houses. Because apparently mobility aids are automatically creepy ๐คจ๐ npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie Garden discoveries today: a baby scaevola plant! I planted the mama plant about 2m away, just over a year ago. Spotted this baby today ๐ Also, this creeper is about to flower for the first time, planted only a few months ago. I think it's the Australian Bluebell creeper, Billardiera fusiformis. Bonus photo of pale pink pimelea. #BloomScrolling https://assets.disabled.social/media_attachments/files/111/142/198/159/578/889/original/833c6c8cd69c2e38.jpg https://assets.disabled.social/media_attachments/files/111/142/198/436/689/741/original/993d6ee08755c90f.jpg https://assets.disabled.social/media_attachments/files/111/142/198/713/620/827/original/4cec8aa8d323cb4d.jpg npub13fzn0683yy3dxu8re2xrxz8uczfl62sz80mcwud6jz84tm6xg8yqz3wqea WearyBonnie *Resets the Days Since Ableist Nonsense from a Self-Proclaimed 'leftie' sign* *sigh* Bigots aren't bigots because they're unhealthy, overweight, underweight, or 'genetically inferior'. JFC listen to yourself, what the actual hell. You sound like a Nazi.