genXcrone (she/her)

Disabled. Gen-X. Seven Sisters Alum. She/her. Voracious reader. I like SFF, yarn & wool crafts, sim games, wrestling, and genealogy. Former poet and writer trying to relearn post-disability.

[Header Image: Photo of my Siberian Husky Niki-bear taken at a pond.]

[Avatar Image: A B&W headshot of me, a fat white woman. I am goofily sticking out my tongue.]

Last Notes

2025-11-18 19:09:00 GMT

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@nprofile…hwyn Another restaurant around the corner?! I am unsurprised but still aghast at how terrible that is.

2025-11-17 19:07:04 GMT

Once upon a time I called a restaurant and asked if they were wheelchair accessible. I specifically asked about stairs. They said yes they were wheelchair accessible, there were no stairs at all. We arrived, excited to try their food, to find there were steps to get into the restaurant. I asked why they said it was accessible when I couldn't even get in the door. They said the restaurant is accessible once you get inside.
I think about this a lot. It's accessible once you get inside, but they don't offer you any way to get in there.
This is common. That restaurant wasn't the first place to be inaccessible while saying it is accessible, it's just the one that stuck with me most because the host was so sure they were accessible and could accommodate me. They were even happy about being able to have me there.
So how does this go so wrong? Can you tell me, because I don't know. How did they get so close and still fail?
Here's a funny one for you: There is a restaurant on Staten Island that has a really great ramp. It's obviously up to spec. The only problem is to use the door at the top of the ramp you have to go up the stairs, inside the restaurant, and ask someone to open the door at the top of the ramp. So close, right? Disabled people would never be out without a nondisabled person, so this is a smart decision. (This is not a smart decision. Disabled people do in fact go out alone or with other disabled people.)
Nondisabled people do not understand disability or disabled people. Not at all. They think they do, but they view everything through their own biases and fail to truly know us as separate human beings. That's a problem, not that they realize it.

2025-04-26 22:31:59 GMT

Among other things I have ME/CFS, and I'm currently crashing. I'm sleeping far more than I'm willing, am groggy and cogfoggy, and it's basically not a treat.
A friend said: I wish I could sleep all day.
sigh
They were emotionally going through it so I let it go.
What I wanted to say was:
If you really want to sleep all day, then do it. You get to make that choice for yourself.
For me and people with ME/CFS it is not a choice. When our bodies shut down and sleep that's it. Did you know it's actually recommended to not move us when we crash?
I also wanted to say:
You don't mean that you want to sleep all day. You mean that you want to stay in bed and hide from the world all day.
I'm not hiding from the world when ME/CFS makes me crash. I'm losing the world.
And:
You don't want to sleep all day, you want to rest.
ME/CFS sleep is not restful.
#MECFS #LongCovid

2024-12-30 05:57:33 GMT

I'm 56 today. Not bad for someone who never envisioned a life past 30.