Mads / Mads is on Nostr

Husband: @tyler
Bestie: @[email protected]

🔗 bridged from [email protected] (fediverse)

Last Notes

2026-11-01 01:55:50 GMT

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Here is the recipe 💓 https://youtube.com/shorts/6OeSfxnkEF0

2026-11-01 01:12:06 GMT

https://cdn.nicecrew.digital/24/48/0b/24480beabb889292f3fa8cbab5199407d9984ac845e7c1c702e114457babca1f.png

2026-08-22 02:32:31 GMT

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https://cdn.nicecrew.digital/33/a5/cd/33a5cd72d420e5bfdaa60bb5f8db2531494d091b5a7d68e534589fdcfe4e599e.jpg

2026-08-22 02:26:34 GMT

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Ok so you know that autoimmune disorder my sister has and I'm getting tested for? And the connective tissue one? Well there is a condition associated them called Mast Cell Activation Syndrome and people develop crazy allergies. Honestly, it's super confusing so look it up if you want to know beyond that. But I spent a year in/out of the hospital on steroids and shit from allergies randomly when I was 18. I had a lot of stress that year (leaving my family and marrying Tyler and moving across the country and him deploying and leaving me alone) and I think that's what kickstarted my bazillion allergies. Could also just be random. Idk I always thought I moved and just reacted to a new climate idk.

2026-08-22 02:19:49 GMT

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I loved shrimp and grits as a kid but unfortunately as an adult I'm allergic to shrimp now 😭

2026-08-22 01:41:46 GMT

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Now I want a fish sandwich

2026-08-13 22:43:33 GMT

Something happened to my taste buds recently because I'm literally obsessed with chili now

2026-08-11 03:43:31 GMT

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I'm still recovering from surgery but I have PT tomorrow, working on getting back on my feet. Every day is better but I'm not walking normal and it still hurts. Baby steps I guess. When I'm healed I really want to get into weight training because I don't want to be a frail old lady. I'm 29, I still have tons of life to live. I just know I need to be a little more careful since I keep getting hurt. I'll look into those types of exercises, thank you

2026-08-11 03:26:33 GMT

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Yeah I fell down the stairs and sprained my thumb because I didn't know I had shredded my tendon in my leg when I fractured my tibia. Oops.

2026-08-11 03:16:58 GMT

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I printed up notes I wrote and cEDS criteria and stuff about POTS and my health history. My doctor today was pretty great and gave me referrals and did some labs. I've had a really rough 8 months health wise. 2 sprains, joint surgery on my wrist, and ankle surgery couple weeks ago. He's sending me to a rheumatologist.. I wasn't sure who to go to for EDS and mentioned I had read about that and he said that was fine and sent a referral for me. My orthopedic surgeons just said I had bad luck, but they didn't do for my health history and only were looking at an isolated event

2026-08-11 03:13:31 GMT

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So they had said on her discharge paper they did an EKG and they did NOT do that. She actually had looked through labs she had months prior and how she had a positive marker for AAG being too high (or something) and she told her primary doctor and the PCP pretty much didnt care. The hospital said to give her a referral to neuro/cardio and then they didn't and her primary said she didn't need the referral... So I told her to change doctors. So she did and finally got diagnosed.

2026-08-11 02:54:50 GMT

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The twitchy stuff only started happening to her in the past few months! Which led to a hospitalization... Actually one of the doctors told her that it was "just stress" and that "maybe she should consider getting a job since she's unemployed and obviously stressed about that"
My sister is a stay at home mom :animu_laugh: idiotic doctors.

2026-08-11 00:35:45 GMT

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I looked at it before. I saw doctors about that and went to an Allergist and dermatologist but nobody ever mentioned MCAS until I learned about it through pots and eds research

2026-08-11 00:34:55 GMT

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So when I turned 18 I moved across the country and broke out in a rash on my entire body and was very sick for a year. Took steroids for 6 months. Developed dozens and dozens of skin and food intolerances.. I'll ask about that when I see whatever specialist I go to next.

2026-08-10 20:01:55 GMT

They had to reschedule my appointment last week but I had it this morning and got referrals for EDS and POTS. They had me do a screening test in office for POTS and I "passed" so off to the cardiologist I go. Did some labs too. Thanks for bringing up EDS @npub14ul…026d

2026-07-16 18:38:33 GMT

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That's why I just wear overalls when we have guests around the house property now. No bra needed since it covers the front well :animu_laugh:

2026-07-16 18:34:34 GMT

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I absolutely hate wearing a bra. I had to wear one over Christmas when we visited family and I literally got mastitis from compression

2026-07-07 23:05:56 GMT

Making asparagus tonight. Hopefully my family enjoys this new cooking method and I don't end up binge eating a pound of it